If my life were a summer block buster I would have to call it “One Day At A Time.” Yes I know that it was a television show but that is the way I live. With Chiari Malformation sometimes you are feeling great sometimes you wished you could just make everything and everyone go away.
The actress that would portray me would have to be Olivia Wilde. I say this because she is a great actress and she has the same hair, eye and skin tones as I do. My son would be portrayed by Thomas Horn from Extremely Loud and Incredibly Close, he is the perfect match for bub.
Since the show House had a situation with ACM I feel that Olivia would understand the logistics of my condition but she would have to study hard to understand exactly what it can do to a person. She would also have to understand on special needs children and how the disabilities do not always agree with each other on which issue will arise on any particular day.
We would sit down and chat about how ACM has affected not just me but my family and the struggles that we have been through trying to get help through it all. Thomas would be the perfect actor to show how children of all kinds deal with health issues. They would be proactive with the ACM community as well as be a strong advocate for ACM and other issues that ACM can bring.
Olivia would be able to watch a decompression surgery to know what the neurosurgeons do to hopefully alleviate the symptoms that go along with ACM. They would also do a public service announcement with the information and statics of how many suffer from ACM to help spread the word around the world.
What is the ending you ask? Well it is still being written so it is open ended at this point, stay tuned to see what happens next!